
Ehlers-Danlos syndrome is taking its toll on Pam Coburn, pictured with her sons. Photo: ALICE PARMINTER
Sufferers’ dilemma: ‘die or fund ourselves’
Every day is a struggle for Athenree resident Pam Coburn, who sometimes doesn’t have the energy to get out of bed. The once-active and outgoing woman has classical Ehlers-Danlos syndrome…